Author Archives: Emily Grumbine

Cystic Fibrosis is going down

On July 18th, Vertex Pharmaceuticals announced positive early study results for next-generation CFTR modulators. Why is this exciting news? Because this is what many of us with cystic fibrosis have been waiting for: a medicine that will treat the underlying … Continue reading

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Maine Beach Sunrise

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Fitness Goal 2017 continues

At the beginning of 2017, in hopes of giving these lungs a good year-long clearing, I set a goal of running 10K (6.2 miles) each week for a total of 322.4 miles for the year. Up until I got sick … Continue reading

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Early bird

This is the day the Lord has made; let us rejoice and be glad in it. ~Psalm 118:24 We caught the sunrise this morning. What a great way to start the day. Thank you Lord for this day. Help me … Continue reading

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Over 7 months of Indrepta and now Taurinac

I’ve been taking the CF supplement Indrepta for over 7 months now. You can read about this supplement here. There are now 3 versions of Indrepta available. On November 26, 2016, I began taking Indrepta A for a couple months. I … Continue reading

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Thankful Thursday: Cousins, Progress and Ice cream

We can all think of something to be thankful for. This week I’m thankful for: The safe arrival of my cousins who traveled here for a month from Uganda to visit family and friends. My cousin serves as the executive … Continue reading

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Thankful Thursday: Improvement

I have a thankful heart. I had a follow up appointment this week and my doctor seems to agree that things are moving in the right direction. I’ll be doing at least another week of IV antibiotics and go back … Continue reading

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How am I doing?

Let us hold unswervingly to the hope we profess, for he who promised is faithful. ~Hebrews 10:23 I’ve been really sick recently. It always starts with a tickle in my throat and then things sort of fast forward to a … Continue reading

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Emily’s Athletes Final #

Thank you for your support this year. Team Emily’s Athletes raised $11,260 for cystic fibrosis research and drug development in 2017! We are so thankful to everyone for their generosity in supporting this cause.

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Team Emily’s Athletes 2017

May is Cystic Fibrosis Awareness month. Walking in the Cystic Fibrosis Foundation’s Great Strides walk is one of the things that Jim and I do each year to raise awareness about cystic fibrosis and support the effort to find a cure. … Continue reading

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