Category Archives: Health Insurance / Medical Insurance

Cleveland Clinic Visit

Peace I leave with you; my peace I give to you. Not as the world gives do I give to you. Let not your hearts be troubled, neither let them be afraid. ~John 14:27 We traveled to Cleveland Clinic this past week to … Continue reading

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Cystic Fibrosis is going down

On July 18th, Vertex Pharmaceuticals announced positive early study results for next-generation CFTR modulators. Why is this exciting news? Because this is what many of us with cystic fibrosis have been waiting for: a medicine that will treat the underlying … Continue reading

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30 days on Indrepta

So I’ve been taking the CF supplement Indrepta for just over 30 days now. (I’m taking the recommended dose of 3 capsules, 3 times per day.) Overall, I’ve had a positive experience with this supplement. I haven’t experienced drastic symptom improvements … Continue reading

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Compassionate Use of Bronchitol

While it’s important to listen to your doctor and stay compliant with the medications in your treatment plan, I’ve learned you have to advocate for yourself and research treatments that may not be on your doctors radar for you. There … Continue reading

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In the Hole!

So I had a cf clinic visit on Monday. I knew going into this appointment that things weren’t looking that great. I caught some sort of a virus about 2 weeks ago and had flu like symptoms for 5 or … Continue reading

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Health Update

I had a CF clinic appointment 2 weeks ago. A lot of things are checked and monitored at these appointments but for us CFers, pulmonary function tests or PFTs are THE TEST. My lung function was the same as it … Continue reading

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