Category Archives: Respiratory / Asthma

CF Conference

Today is the start of this year’s North American CF Conference. One of the great things about technology is that you can experience important events like this, even if you are unable to physically be present. If you’re interested to … Continue reading

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Running Goal 2017

And the running continues……I set a goal of running at least 10K each week for the year 2017 in hopes of giving these lungs a good year long clearing. That’s a total of 322.4 miles for the year. While June … Continue reading

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Cleveland Clinic Visit

Peace I leave with you; my peace I give to you. Not as the world gives do I give to you. Let not your hearts be troubled, neither let them be afraid. ~John 14:27 We traveled to Cleveland Clinic this past week to … Continue reading

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Cystic Fibrosis is going down

On July 18th, Vertex Pharmaceuticals announced positive early study results for next-generation CFTR modulators. Why is this exciting news? Because this is what many of us with cystic fibrosis have been waiting for: a medicine that will treat the underlying … Continue reading

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Fitness Goal 2017 continues

At the beginning of 2017, in hopes of giving these lungs a good year-long clearing, I set a goal of running 10K (6.2 miles) each week for a total of 322.4 miles for the year. Up until I got sick … Continue reading

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Over 7 months of Indrepta and now Taurinac

I’ve been taking the CF supplement Indrepta for over 7 months now. You can read about this supplement here. There are now 3 versions of Indrepta available. On November 26, 2016, I began taking Indrepta A for a couple months. I … Continue reading

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How am I doing?

Let us hold unswervingly to the hope we profess, for he who promised is faithful. ~Hebrews 10:23 I’ve been really sick recently. It always starts with a tickle in my throat and then things sort of fast forward to a … Continue reading

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Team Emily’s Athletes 2017

May is Cystic Fibrosis Awareness month. Walking in the Cystic Fibrosis Foundation’s Great Strides walk is one of the things that Jim and I do each year to raise awareness about cystic fibrosis and support the effort to find a cure. … Continue reading

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I’m Pressing On-Update

Whatever you do, work at it with all your heart, as working for the Lord, not for human masters, ~Colossians 3:23 Physical activity has been challenging lately. When your lungs aren’t working well, you realize just how much you need them to … Continue reading

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Fitness Challenge 2017

As I near the end of my lung transplant evaluation, it’s top priority to keep my body active and as ‘healthy’ as possible as I prepare for surgery. Continued exercise is key. My fitness challenge in 2016 was climbing stairs. … Continue reading

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