Category Archives: Respiratory / Asthma

Cystic Fibrosis is going down

On July 18th, Vertex Pharmaceuticals announced positive early study results for next-generation CFTR modulators. Why is this exciting news? Because this is what many of us with cystic fibrosis have been waiting for: a medicine that will treat the underlying … Continue reading

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Fitness Goal 2017 continues

At the beginning of 2017, in hopes of giving these lungs a good year-long clearing, I set a goal of running 10K (6.2 miles) each week for a total of 322.4 miles for the year. Up until I got sick … Continue reading

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Over 7 months of Indrepta and now Taurinac

I’ve been taking the CF supplement Indrepta for over 7 months now. You can read about this supplement here. There are now 3 versions of Indrepta available. On November 26, 2016, I began taking Indrepta A for a couple months. I … Continue reading

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How am I doing?

Let us hold unswervingly to the hope we profess, for he who promised is faithful. ~Hebrews 10:23 I’ve been really sick recently. It always starts with a tickle in my throat and then things sort of fast forward to a … Continue reading

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Team Emily’s Athletes 2017

May is Cystic Fibrosis Awareness month. Walking in the Cystic Fibrosis Foundation’s Great Strides walk is one of the things that Jim and I do each year to raise awareness about cystic fibrosis and support the effort to find a cure. … Continue reading

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I’m Pressing On-Update

Whatever you do, work at it with all your heart, as working for the Lord, not for human masters, ~Colossians 3:23 Physical activity has been challenging lately. When your lungs aren’t working well, you realize just how much you need them to … Continue reading

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Fitness Challenge 2017

As I near the end of my lung transplant evaluation, it’s top priority to keep my body active and as ‘healthy’ as possible as I prepare for surgery. Continued exercise is key. My fitness challenge in 2016 was climbing stairs. … Continue reading

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Climb for a Cure Finish Line

My sister, Olivia, and I took on a fitness challenge in January of 2016 to raise money for the Cystic Fibrosis Foundation. We called it our climb for a cure. Our goal was to each climb at least 300 flights of stairs … Continue reading

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I Think I’m Ready

I’ve been thinking about transplant a lot lately. Five years ago, if you asked me if I’d need a lung transplant, I’d probably say “no”, or maybe “I hope it doesn’t get to that point.” Even as recent as 2014, it wasn’t … Continue reading

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30 days on Indrepta

So I’ve been taking the CF supplement Indrepta for just over 30 days now. (I’m taking the recommended dose of 3 capsules, 3 times per day.) Overall, I’ve had a positive experience with this supplement. I haven’t experienced drastic symptom improvements … Continue reading

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