Category Archives: Treatments

CF Conference

Today is the start of this year’s North American CF Conference. One of the great things about technology is that you can experience important events like this, even if you are unable to physically be present. If you’re interested to … Continue reading

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Cleveland Clinic Visit

Peace I leave with you; my peace I give to you. Not as the world gives do I give to you. Let not your hearts be troubled, neither let them be afraid. ~John 14:27 We traveled to Cleveland Clinic this past week to … Continue reading

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Over 7 months of Indrepta and now Taurinac

I’ve been taking the CF supplement Indrepta for over 7 months now. You can read about this supplement here. There are now 3 versions of Indrepta available. On November 26, 2016, I began taking Indrepta A for a couple months. I … Continue reading

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Thankful Thursday: Improvement

I have a thankful heart. I had a follow up appointment this week and my doctor seems to agree that things are moving in the right direction. I’ll be doing at least another week of IV antibiotics and go back … Continue reading

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Thankful Thursday

I don’t know how people get through anything challenging in life without knowing the Lord. We’ve experienced some unexpected events in the last couple of weeks and if I didn’t know and trust that God had a plan for it all, I would’ve … Continue reading

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I Think I’m Ready

I’ve been thinking about transplant a lot lately. Five years ago, if you asked me if I’d need a lung transplant, I’d probably say “no”, or maybe “I hope it doesn’t get to that point.” Even as recent as 2014, it wasn’t … Continue reading

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30 days on Indrepta

So I’ve been taking the CF supplement Indrepta for just over 30 days now. (I’m taking the recommended dose of 3 capsules, 3 times per day.) Overall, I’ve had a positive experience with this supplement. I haven’t experienced drastic symptom improvements … Continue reading

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Indrepta

I’m receiving a delivery in the mail tomorrow that I’m pretty excited about. It’s a new supplement called Indrepta developed by the Sharktank Research Foundation. If you’re interested, check it out: I’ll keep you updated.  

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Climb For a CF Cure Update

We’ve been climbing since January 2016, with a goal to climb 31,200 FLIGHTS of stairs before we ring in the new year. We are determined to see cystic fibrosis stopped in its tracks. Our team, Emily’s Athletes, raised a total … Continue reading

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Effective Curcumin Option

I have lots of inflammation throughout my body. Curcumin is a supplement I’ve taken for years now as it has powerful anti-inflammatory effects but it’s always been fat soluble. Jim recently showed me a new water soluble solution and I … Continue reading

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