Category Archives: Research and Fundraising

Cystic Fibrosis is going down

On July 18th, Vertex Pharmaceuticals announced positive early study results for next-generation CFTR modulators. Why is this exciting news? Because this is what many of us with cystic fibrosis have been waiting for: a medicine that will treat the underlying … Continue reading

Posted in Health Insurance / Medical Insurance, Life, Research and Fundraising, Respiratory / Asthma | Tagged , , , , , | Leave a comment

Over 7 months of Indrepta and now Taurinac

I’ve been taking the CF supplement Indrepta for over 7 months now. You can read about this supplement here. There are now 3 versions of Indrepta available. On November 26, 2016, I began taking Indrepta A for a couple months. I … Continue reading

Posted in Life, Nutrition, Research and Fundraising, Respiratory / Asthma, sinus, Treatments | Tagged , , , , | 3 Comments

Emily’s Athletes Final #

Thank you for your support this year. Team Emily’s Athletes raised $11,260 for cystic fibrosis research and drug development in 2017! We are so thankful to everyone for their generosity in supporting this cause.

Posted in Exercise, Life, Nutrition, Research and Fundraising, Thankful Thursday | Tagged , , , , | Leave a comment

Team Emily’s Athletes 2017

May is Cystic Fibrosis Awareness month. Walking in the Cystic Fibrosis Foundation’s Great Strides walk is one of the things that Jim and I do each year to raise awareness about cystic fibrosis and support the effort to find a cure. … Continue reading

Posted in Diabetes, Exercise, Life, Research and Fundraising, Respiratory / Asthma | Tagged , , , , , , | Leave a comment

Cystic Fibrosis Advocacy Day

Today, for the 2nd time, I was able to participate in The Cystic Fibrosis advocacy day at the Massachusetts State House set up and hosted by the Cystic Fibrosis Foundation. Similar advocacy days are taking place at numerous sites around … Continue reading

Posted in Life, Research and Fundraising | Tagged | Leave a comment

30 days on Indrepta

So I’ve been taking the CF supplement Indrepta for just over 30 days now. (I’m taking the recommended dose of 3 capsules, 3 times per day.) Overall, I’ve had a positive experience with this supplement. I haven’t experienced drastic symptom improvements … Continue reading

Posted in Diabetes, Exercise, Health Insurance / Medical Insurance, Life, Nutrition, Research and Fundraising, Respiratory / Asthma, Treatments | Tagged , , , , | 3 Comments

Indrepta

I’m receiving a delivery in the mail tomorrow that I’m pretty excited about. It’s a new supplement called Indrepta developed by the Sharktank Research Foundation. If you’re interested, check it out: I’ll keep you updated.  

Posted in Nutrition, Research and Fundraising, Respiratory / Asthma, sinus, Treatments | Tagged , , | 1 Comment

Climb For a CF Cure Update

We’ve been climbing since January 2016, with a goal to climb 31,200 FLIGHTS of stairs before we ring in the new year. We are determined to see cystic fibrosis stopped in its tracks. Our team, Emily’s Athletes, raised a total … Continue reading

Posted in Exercise, Life, Research and Fundraising, Treatments, Workout Wednesday | Tagged , , , , , , | Leave a comment

Great Day for Great Strides

On Saturday, May 21st in North Andover, team Emily’s Athletes walked to support finding a cure for cystic fibrosis. Each year we have a bunch of family and friends join us in this cause and we raise money for the … Continue reading

Posted in Exercise, Life, Research and Fundraising | Tagged , , , , , , , , , , | Leave a comment

May: Cystic Fibrosis Awareness

The month of May is awareness month for a bunch of diseases including Cystic Fibrosis. Although Cystic Fibrosis is a rare disease (only 30,000 people in the US have CF), being a carrier of this disease isn’t that rare. One … Continue reading

Posted in Life, Research and Fundraising | Tagged | Leave a comment