Category Archives: hospital stay

Cleveland Clinic Visit

Peace I leave with you; my peace I give to you. Not as the world gives do I give to you. Let not your hearts be troubled, neither let them be afraid. ~John 14:27 We traveled to Cleveland Clinic this past week to … Continue reading

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I’m Pressing On-Update

Whatever you do, work at it with all your heart, as working for the Lord, not for human masters, ~Colossians 3:23 Physical activity has been challenging lately. When your lungs aren’t working well, you realize just how much you need them to … Continue reading

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Happy to be Taking Bronchitol

Last Tuesday morning, Jim and I got up at 3:30am to start our morning treatment routine so that we could leave our house before 6am to make it to the hospital for 7:30am. It took 5 months of praying, trusting and … Continue reading

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Trip to Cleveland Clinic

At the recommendation of my cystic fibrosis clinic in Boston, I began the process of being evaluated for a double lung transplant on February 22nd. After looking into a few different transplant programs in the country, we decided to be … Continue reading

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High Intensity Interval Training to Increase Lung Function

During my hospital stays, I exercise daily with a physical therapist. We mostly use the treadmill and sometimes add in some strength training. After every hospital stay, regardless of how long or how sick I was, I have to get … Continue reading

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PICC line is gone!

Today the visiting nurse came and pulled out Emily’s PICC line after 3 weeks. It was 39 cm long so we had to take a picture! No more carrying around an IV bag all day – no more sleeping and … Continue reading

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Working around obstacles: Strength training with picc line

Work with what you’ve got. Sometimes you just can’t get to the gym but that doesn’t mean you can’t exercise. Here are some upper body exercises that you can do with a resistance band. I try to shoot for 3 … Continue reading

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Pressing onward-I will not be shaken

I’m thankful to be home and sleeping in my own bed. I came home from the hospital on Friday night and will be doing IV antibiotics at home for at least 2 weeks. As difficult as it is to be … Continue reading

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In the Hole!

So I had a cf clinic visit on Monday. I knew going into this appointment that things weren’t looking that great. I caught some sort of a virus about 2 weeks ago and had flu like symptoms for 5 or … Continue reading

Posted in Health Insurance / Medical Insurance, hospital stay, Infectious Diseases / Bacteria / Viruses, Respiratory / Asthma | Tagged , , , | 2 Comments