30 days on Indrepta

So I’ve been taking the CF supplement¬†Indrepta for just over 30 days now. (I’m taking the recommended dose of 3 capsules, 3 times per day.) Overall, I’ve had a positive experience with this supplement. I haven’t experienced drastic symptom improvements but as many CFers will tell you, stability at this stage in the disease is a good thing. Here are some of the changes I’ve noticed since starting Indrepta:

  • No hemoptysis (no lung bleeds for 6 weeks)
  • Mucus slightly thinner
  • Sleeping a little better
  • My resting O2 sats at night before bed have been a little higher
  • Weight is up a couple lbs
  • No night sweats

Am I sure that these changes are definitely the effects of taking Indrepta? No,¬†but I am definitely going to keep taking it for now. I’m happy with the results so far and I’m hoping to experience more benefits the longer I take it.

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3 Responses to 30 days on Indrepta

  1. C&C says:

    It sounds great! Happy that you’very noticed some positive changes, whatever, so stay on track:) ly.

  2. Elly says:

    Hey Emily,

    Can you give us an Indrepta update – are you still taking it? Any benefits?

    I started it last week, so really curious to hear others results.

    Elly (fellow CFer)

    • Emily Grumbine says:

      Hi Elly, I’m still taking it and added Taurinac last week. I don’t have anything major to report as of yet but the combination may be helping me recover from this most recent sickness. I have heard of others experiencing great success though. I have one Del508 and one frameshift mutation (394deltt) so I am not sure how dramatic my results will be. I really hope it works well for you.

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