Cleveland Clinic Visit

Peace I leave with you; my peace I give to you. Not as the world gives do I give to you. Let not your hearts be troubled, neither let them be afraid. ~John 14:27

We traveled to Cleveland Clinic this past week to do the dreaded week of testing and appointments for a lung transplant evaluation. For about a year now, my lung function has been hovering a few percentage points away from needing new lungs to survive. Cystic fibrosis is very unpredictable, one little cold and lung function can quickly decline. All summer, I was unsure if I would be a candidate anywhere for lung transplant. At the very beginning of June we heard that I would not be accepted into the Boston transplant program (due to some complexities of my cystic fibrosis) after going through a full transplant evaluation with them. My CF specialist in Boston directed us to Cleveland Clinic again and said they may be willing to help us as they have a reputation for taking on high risk transplant cases……They were willing to see us the first week of October.

I am thankful to report that after a week of doctors appointments and tests at Cleveland Clinic, we were told that I am a candidate for a lung transplant in their program and they are confident moving forward with my case. The transplant pulmonologist that we met with said that I am not quite ready to be listed for transplant yet and he would like to have us back to reassess in 4 months and sooner if my health declines. Overall we left Cleveland feeling very encouraged and thankful that God has led us to this amazing place. At the right time, Cleveland Clinic will do my transplant surgery. 

Peace is the word that describes our experience this past week at Cleveland Clinic. Inexpressible peace. A peace that far surpasses my understanding. This past week was completely draining and exhausting, both physically and mentally. We had about 30 different doctors appointments/tests/procedures to get through in 4 days. There was absolutely nothing easy about it……….but His peace was there. We both experienced it throughout the whole week. For this we are extremely thankful. God’s faithfulness never fails. He is real and He is so worth knowing.

Thank you for your prayers during this time. We both appreciate them more than words can express.

“For the mountains may depart and the hills be removed but my steadfast love shall not depart from you, and my covenant of peace shall not be removed,” says the Lord, who has compassion on you. ~Isaiah 54:10


This entry was posted in Diabetes, Exercise, faith, Health Insurance / Medical Insurance, hospital stay, Life, Nutrition, Research and Fundraising, Respiratory / Asthma, Thankful Thursday, Treatments and tagged , , , , , . Bookmark the permalink.

Leave a Reply

Your email address will not be published. Required fields are marked *