I’m thankful to be home and sleeping in my own bed. I came home from the hospital on Friday night and will be doing IV antibiotics at home for at least 2 weeks. As difficult as it is to be sick, the blessings in life become so apparent during times like this. We have so much to be thankful for. My doctor told us a few encouraging things. My xray from this hospital stay looks better than it did last year when I got sick and my inflammatory markers are in good range which was not the case last year. No steroids needed!
It’s a lot of work to do home IV infusions but this is really the most ideal way to do a course of IV antibiotics for many CFers. Being in the hospital has the potential to expose us to so many unwanted viruses and bacteria. For those of you who have spent a decent amount of time in the hospital, you know good sleep is hard to come by in a hospital room as well. Jim and I have such a strict treatment plan routine at home, that my doctor felt that I would recover best in my own home after having my picc line placed and receiving a few doses inpatient. The first few days at home have been very busy and overwhelming. I’m doing my regular cf treatments and exercise along with IV infusions. I have a visiting nurse who comes twice a week. This truly is my full time job for the next couple of weeks. Here we are on day 6 of IV antibiotics and I am starting to feel a slight improvement in my breathing. PTL! I was encouraged today and I thank God for the strength to persevere. I pray for continued healing. This song has meant a lot to me during this bout of sickness.