I want to write about my cf journey for a bunch of reasons:
I haven’t done a very good job of reaching out to other CF patients up to this point in my life. We are not encouraged to physically be around one another because of the bacteria we carry. Cross infection among cystic fibrosis patients is a concern. Treating cystic fibrosis and taking care of myself is a huge part of my day. I have an amazing support network of family and friends and I enjoy spending time with each one but I find myself struggling to relate sometimes. Until you walk in someone else shoes, you don’t really know what it’s like to be them. Through this blog, I hope to make some connections and find mutual encouragement and inspiration through these.
I was born with cystic fibrosis and so this is my norm. I’ve experienced and learned a lot living with this disease. I will be an open book about my current treatments. I’d like to share tips on what’s worked for me and hopefully something I share will be beneficial to others.
Spread awareness and educate
I’m surprised at how many people still don’t know what cystic fibrosis is. And even those who do know, still don’t really understand how critical our daily treatment plan is and how much time each day we spend taking care of ourselves. I hope to spread awareness through this blog and educate those who don’t really know or understand what cystic fibrosis is.
Importance of Exercise
Exercise has, without a doubt, made my quality of life better. Exercise is an important part of my CF treatment plan. I’m promoting exercise here people! Consistent exercise has endless benefits for everyone, not just CFers. I will share exercises and tips from my experience.
Inspire and encourage
I love life. Life is so much more enjoyable when you take care of yourself, CFer or not. Living with cystic fibrosis presents many daily challenges but we can still accomplish great things if we set our minds to it. I will promote treatment compliance, setting high goals and being your own health advocate.
I’m thankful for the life God has blessed me with and I will share my thankfulness. In many ways, I consider it a blessing to have cystic fibrosis. It motivates me to make the most of each day. To take care of myself. To appreciate the little things. To invest in relationships. We are all on a journey. This is the race marked out for me.