Tag Archives: compassionate use

Happy to be Taking Bronchitol

Last Tuesday morning, Jim and I got up at 3:30am to start our morning treatment routine so that we could leave our house before 6am to make it to the hospital for 7:30am. It took 5 months of praying, trusting and … Continue reading

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Thankful Thursday: Easter

Whatever our week brings, we have a lot to be thankful for. Some things that come to mind this week are: Emily-I’m thankful for a merciful God and a trustworthy Savior. This Easter Sunday we celebrate the resurrection of Jesus … Continue reading

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Thankful Thursday: Encouragement and Steelers Country

We are thankful this week for: Emily-I heard from the research coordinator at my clinic this morning regarding this. The application (which involves a TON of paperwork on their end) for the compassionate use of inhaled mannitol for me has been … Continue reading

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Compassionate Use of Bronchitol

While it’s important to listen to your doctor and stay compliant with the medications in your treatment plan, I’ve learned you have to advocate for yourself and research treatments that may not be on your doctors radar for you. There … Continue reading

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