Tag Archives: FDA

Big Day for Cystic Fibrosis

Today the FDA approved Symdeko! This is one of three treatment options on the market now that address the underlying cause of cystic fibrosis. This is very exciting and will benefit many people who live with cystic fibrosis. Read about … Continue reading

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Happy to be Taking Bronchitol

Last Tuesday morning, Jim and I got up at 3:30am to start our morning treatment routine so that we could leave our house before 6am to make it to the hospital for 7:30am. It took 5 months of praying, trusting and … Continue reading

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Thankful Thursday: Miracles and Easter

Give thanks in all circumstances, for this is the will of God in Christ Jesus for you.       1Thessalonians 5:18 Emily-I’m very thankful that I heard from the research coordinator at my clinic and I will be starting … Continue reading

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