Tag Archives: research

Cystic Fibrosis is going down

On July 18th, Vertex Pharmaceuticals announced positive early study results for next-generation CFTR modulators. Why is this exciting news? Because this is what many of us with cystic fibrosis have been waiting for: a medicine that will treat the underlying … Continue reading

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Emily’s Athletes Final #

Thank you for your support this year. Team Emily’s Athletes raised $11,260 for cystic fibrosis research and drug development in 2017! We are so thankful to everyone for their generosity in supporting this cause.

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Team Emily’s Athletes 2017

May is Cystic Fibrosis Awareness month. Walking in the Cystic Fibrosis Foundation’s Great Strides walk is one of the things that Jim and I do each year to raise awareness about cystic fibrosis and support the effort to find a cure. … Continue reading

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Great Day for Great Strides

On Saturday, May 21st in North Andover, team Emily’s Athletes walked to support finding a cure for cystic fibrosis. Each year we have a bunch of family and friends join us in this cause and we raise money for the … Continue reading

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Happy to be Taking Bronchitol

Last Tuesday morning, Jim and I got up at 3:30am to start our morning treatment routine so that we could leave our house before 6am to make it to the hospital for 7:30am. It took 5 months of praying, trusting and … Continue reading

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Great Strides 2015- Team Emily’s Athletes

Team Emily’s Athletes We had a fun day at the Great Strides Walk yesterday.  I am proud to say that our team, Emily’s Athletes, raised $8335 this year for the Cystic Fibrosis Foundation and the donations are still rolling in! … Continue reading

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