Tag Archives: treatment

Big Day for Cystic Fibrosis

Today the FDA approved Symdeko! This is one of three treatment options on the market now that address the underlying cause of cystic fibrosis. This is very exciting and will benefit many people who live with cystic fibrosis. Read about … Continue reading

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Big News in the CF World

Vertex Pharmaceuticals has decided which two next-generation correctors to advance into phase 3 development. This means that very soon there could be an extremely effective treatment on the market for roughly 90 percent of people with cystic fibrosis. We are … Continue reading

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Thankful Thursday: Easter

Whatever our week brings, we have a lot to be thankful for. Some things that come to mind this week are: Emily-I’m thankful for a merciful God and a trustworthy Savior. This Easter Sunday we celebrate the resurrection of Jesus … Continue reading

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Compassionate Use of Bronchitol

While it’s important to listen to your doctor and stay compliant with the medications in your treatment plan, I’ve learned you have to advocate for yourself and research treatments that may not be on your doctors radar for you. There … Continue reading

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